Living with cystic fibrosis

POSTED: 7:02 PM Aug 08 2013
Emerald Isle, Carteret County -

Three year old, Karoline Cahoon, has been living with cystic fibrosis almost all her life. Her mother, Melissa Cahoon, said she noticed just days after Karoline was born that something was wrong. Karoline was always hungry and slept very little until doctors diagnosed her with cystic fibrosis. Since then, Karoline has been on medication to help her condition.

Cahoon said Karoline doesn’t even realize she is different from most young children. "She hasn't gotten to the age where she can look around and notice that other people don't eat apple sauce or take their enzymes before they eat their meals.”

 

While Karoline can laugh and play at a water park now, that may not be the case later. Karoline’s parents are hoping a new drug, which is in the research stage, will be able to help her later on. "We've really got our prayers in and our fingers crossed. I'm hoping that ‘kalydeco’ can come through and give her a better future."

 

Cystic fibrosis is a life threatening disease that causes mucus build up in the lungs and other areas of the body. About 70,000 people world-wide are affected by this disease, and there is currently no cure.

 

 This Saturday, marks news channel 12's 36th-annual cystic fibrosis telethon.  It's a night full of fun and singing, but also a night to raise money for the Cystic Fibrosis Foundation. Most of the money raised will go towards researching drugs like kalydeco, to help find a cure.

 

Be sure to tune in Saturday evening on News Channel 12.